Depressing Health Update

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I went to the doctor today because my ear is still killing me and I’ve been running a fever for several days. Turns out I have another middle ear infection…this has to be about the sixth one in six months. Boy, am I getting tired of this. Not much I can do either, since I have tried many “alternative medicine” cures for ear and sinus infections and have went the whole ENT and allergy specialist route, only to find that nothing really works. In the end, I feel like it is just my own immune system working against me.

The doctor also said that she suspects the mouth sores I was dealing with might have been related to Coxsackie Virus (or Hand, Foot, and Mouth Disease). Adults don’t catch that illness nearly as often as kids do, but it can happen, and with my autoimmune issues, I guess it wouldn’t surprise me to find out I did get it.

So, I am on ANOTHER course of antibiotics. Something that depresses me to no end because I fear with all the antibiotics I have had to take lately that I may end up developing C Diff again, which caused me to be hospitalized for almost a week a few years ago. Needless to say, I am not in a good place physically or mentally and am just tired of it all. This chronic illness shit sucks.

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CFS Flare Up Causing Painful Sores?

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The last week has been rather rough. Healthwise, I seem to be having some immune system issues. For some reason, I have gotten sores all over my gums and strangely, under my tongue. They aren’t like regular canker sores, they are more like little painful little red balls and swollen, ulcerated patches. I’m not sure exactly what they are, although while looking around online, I did find forums full of people with CFS and fibromyalgia who have experienced similar outbreaks, so I am guessing maybe it is related to that.

Unfortunately, the sores that are near the back of my jaw are causing an immense amount of ear pain, to the point that it feels like an ear infection. I was also running a low grade fever last night, which makes me think it is some kind of virus or infection causing the sores. I am taking some antivirals suggested by the doctor, but they don’t seem to be helping at all and are only serving to make me nauseated on top of everything else.

Today I was supposed to go to a birthday picnic for one of my husband’s coworkers, but I simply didn’t feel up to it. I feel bad for letting him down because I know he really wanted me to go so that I could get to know his friends better, but socializing is the absolute last thing I feel like doing right now.

All of this has me rather depressed and feeling lethargic. It feels like ever since I overdid it on our mini vacation to Kentucky, my health has taken a nosedive and is struggling to recover. That is what many people don’t understand about CFS, that once you trigger a relapse, it can take weeks to get back to “normal”…and our “normal” is far below average to start with! Chronic pain and chronic illness are no joke and make for a rough life sometimes.

 

Vacations: A Harsh Reality of Chronic Illness

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Over the weekend my husband and I took a short vacation to Louisville, KY to celebrate our 15th anniversary and spend some quality time together. I did have a good time, but I must admit that I dread and sometimes even regret vacations just as much as I look forward to them.

Why? Simple. Chronic Fatigue Syndrome. Vacationing when you have CFS sucks. Big time. Planning the vacation wears you out. Packing wears you out. The travel wears you out. Even though I don’t do the driving, I am still exhausted by the time we even get to our destination. Often, as soon as we get to our hotel I immediately have to lay down for at least a couple hours to recuperate, even if it is only a 2 or 3 hour drive as this one was.

The main excursion we planned was to the Louisville zoo. We had never been there before and both my husband and I love animals. Luckily, it wasn’t a huge zoo, but by the time we had toured about half of it, I was in really poor shape. I had to sit on each bench we came by and rest. I even had to make do with the floor a few times and just collapsed. I was nauseated, felt like passing out, developed a migraine-like headache, and felt extremely overheated, even though it wasn’t that hot out and I stayed hydrated. Heck, most of the buildings were even air conditioned. THIS is what living with CFS is like.

I didn’t get to see much of the rest of the zoo. I was too busy looking for places to rest and recuperate for the trek back to the car. My legs ached so badly and felt so weak that I feared they would give out on me multiple times. My entire body felt like I had been run over or slammed into by something big and heavy. Somehow I did make it back to the car (after resting many, many times on the way there), and then we went directly to our hotel so I could recuperate for the rest of the day. I didn’t even have the stamina to go out for dinner a few hours later, so we ate at the hotel.

I went to bed early, hoping I would feel better in the morning, which didn’t really happen. The next day we visited a cool indie bookstore I had wanted to go to, but I was almost too tired to even enjoy that. We went and found a place by the Ohio River to sit and watch barges pass by, which was peaceful and relaxing. During the drive times to our locations, I curled up with a pillow and laid my seat back to doze.

By the time we headed back for home, I was too exhausted to care about much of anything. When we arrived home, I went almost straight to bed, even though it was only 5pm. The next day (Labor Day), my hip and back were so sore (with a pinched nerve thrown in), that I spent most of the day laying in bed watching a Lake Placid marathon on the Syfy Channel. Any form of movement was excruciating.

All of this makes me wonder if vacations are really worth the trouble. It also makes me wonder if maybe sometime soon I will need to get a motorized chair to even survive simple outings like this. I hate to give in and do that, but my worsening symptoms make it an almost certain possibility eventually.

Digestive Issues and Owl Sightings

What I thought was an IBS attack might actually be a bug or food poisoning or something else. This is the third day straight now I’ve been feeling sick to my stomach and having bowel issues, so it seems much longer than my typical IBS attacks in length. Due to that, I’ve had a rather lazy and boring weekend. I was intending to go to a mental health support group today but didn’t feel up to it and ended up actually sleeping through at least half of it since I didn’t get up until almost 2pm.

Sometimes when I talk about stuff like this it is almost embarrassing lol. I can’t help but imagine old men and women who talk about their daily bowel habits. I promise I’ll try to not make it a daily conversation, but it is part of living with chronic illness and it sucks if you have never experienced chronic digestive issues. Even if I do get an actual stomach bug or something like that, it seems that it takes much longer to get over it now that I have digestive issues anyhow.

One thing that sucked was that my husband went for a walk in the park without me because I was sick and he saw an owl! One of my favorite animals, and a rare one to sight in the daylight 😦 I guess at least he got a picture:

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I obviously felt jealous since I dreamed last night that I found a mama owl and her babies in a tree. I guess I had to one-up him 🙂 Unfortunately, I pissed off the mama owl and she attacked me in the dream.

 

Eating Disorders: My Experiences

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I’ve been watching some intervention episodes and other documentaries about eating disorders recently. I have never been officially diagnosed with an eating disorder of any kind, and am not sure I would consider myself an actual bulimic or anorexic, although I have had destructive behaviors related to both illnesses in the past.

Growing up, my mother and sister were overweight, and I saw what they went through being “fat”. The self-loathing, the cruel mockery from others, the way they would pick on people who were even larger than themselves in an effort to make themselves feel better. From a young age I learned that “fat” was a very bad thing to be. Maybe the “worst” thing you could be in many people’s eyes.

Around the age of 12, right after my dad died, I started putting on weight too. At first I think it was mainly just puberty, but the grief and loss of my father also made me turn to food for comfort. My mother and sister worked all the time after my dad died, so I spent most of my time at home all alone. The loneliness and heartbreak I felt soon turned me into a chubby little girl. I started getting bullied at school for my weight and went from being a confident, athletic, competitive kid to being someone who wished they could just disappear.

When I was around 15, I started working for the first time myself, and the increased physical activity and less time spent lonely and eating soon had me losing weight. I liked what I was seeing and started using little “tricks” to help myself lose more weight. Restricting what I was allowed to eat. Using laxatives if I overate. Trying pills that promised to rev up your metabolism, even if they made me more jittery and anxious.

Over the years, I have had periods of time where I fell into unhealthy habits with eating. Times where I binged and then tried to starve myself. Times where I tried to not eat and lived on water or Diet Coke (one of these periods led to my first visit to a doctor for depression). Obsessions with exercise. Endless calorie counting. Times where I saw the scale falling rapidly due to medicine side effects or a health problem and secretly rejoiced at the thinning. Using medicines that I may not actually need because they help me stay thin. Fearing the use of other medicines I may need because they cause weight gain.

As of right now, I am not actively involved in all of these behaviors on a regular basis, although I am certainly not above them and am still tempted. I do still rely on “stimulants” sometimes that I know probably aren’t good on my heart and health. Pseudoephedrine (a close relative of the diet drug Ephedra) is a big one for me, which is easy to excuse since I do have allergy and sinus issues, but I know I probably overuse it. The last time I was in the hospital, they said I tested positive for Methamphetamines, which was likely the Pseudoephedrine, since I don’t touch any illegal drugs.

I also tend to still play mind games with myself when it comes to food. I have a huge sweet tooth and I’ll tell myself, “Sure, you can have the cupcake/brownie/doughnut/cake/etc, but then you can’t have any lunch or dinner.” In my mind I justify this by saying the junk food is about the same amount of calories as a healthy lunch or dinner, so it is ok to trade them out, but I can’t help but wonder if this may be why I am often deficient in certain minerals and nutrients in blood tests.

This is the first time I’ve publicly shared these things, but I feel like it is something I want to get off my chest and be honest about.

Bronchitis Art Therapy

The last few days have been rough, as I haven’t felt well due to the bronchitis and the side effects of the medicine I am taking for it. About the only thing I’ve been able to do is lay on the couch, watch tv, do sudoku puzzles, and create some ACEO marker drawings/paintings. So, I’m afraid there isn’t much exciting to talk about right now. However, I figured I would share a few more of the artworks I have done while feeling poorly:

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As always, you can find my art for sale on my Ebay store!

Bronchitis Update

I wanted to give a quick update on my health situation since so many of you commented on yesterday’s post about coughing up blood. Thank you to all of you who sent your thoughts and prayers. I did end up going to Urgent Care, where they did a chest x-ray and came to the conclusion it was bronchitis. So I’m on antibiotics yet again (the third time in the last few months).