Nighttime Dread and “Quiet Borderlines” Thoughts

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I slept in until after 2pm this afternoon. I hate when that happens. I feel like most of the day is already gone by the time I get out of bed. I must have slept at least around 12 hours last night, even though I had a bit of an emotional fest when I actually went to bed. For some reason, all the loneliness of the world seems to settle down on me when I try to go to sleep and all the horrible things that have and could happen come around to haunt me. It is often at these times that I feel absolutely alone and helpless in this world, even though logically I know I’m not…at least not right now. But I could be. I could be all alone very easily and that thought sends me into a kind of despair I can’t explain.

Recently I have been reading a book entitled “Beyond Borderline: True Stories of Recovery from Borderline Personality Disorder”. Reading the book has been insightful and interesting, and made me realize I am definitely NOT a traditional borderline. I simply don’t have the acting out behaviors. I guess I could be what some people call “quiet borderlines”, although sometimes I wonder if they are really borderlines or not?

Perhaps some “quiet borderlines” are actually more along the lines of Avoidant Personality Disorder or another anxiety-related personality disorder? Who knows. I’m not a doctor so I can’t say, but I do find so many commonalities running through various personality disorders, that even if you have one, pinpointing which one might be difficult and many people have traits of more than one. For me personally, I think I definitely fit more into the cluster C “anxious and fearful clusters” than the cluster B “dramatic and overly emotional clusters”. In fact, the only time I am visibly overly emotional is when I am so anxious I pretty much panic. Unfortunately this almost always seems to happen in public, because social interaction in itself can easily set off the panic in me.

 

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Getting Out Isn’t Always the Answer

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Many, many times, when I have been severely depressed or anxious, I have heard the repeated suggestion that I just “get out and do something”. I think this is a common misunderstanding that people have about depression and anxiety, that the cure is always just going out and finding something to do.

Personally, I can say that if I am mildly or moderately depressed or anxious, getting out can indeed be a huge help. It is a good way to distract myself and can make my life feel less empty and more meaningful.

However, if I am severely depressed or anxious, “getting out” is absolutely NOT the answer, and I know this from experience. Whenever I have been severely depressed and I somehow managed to make myself leave the house, I have just been a teary, numb mess who ends up feeling worse for being unable to stop the tears in public. During these times, I am unable to join in with anything going on around me and will just sit there and cry and feel embarrassed, wishing desperately I had never left home.

As for times of severe anxiety, I often also deal with severe irritability and a tendency to snap at others, even when I don’t mean to do so. “Going out” when in this state can actually damage relationships because people wonder why you are taking it out on them, even if you absolutely don’t intend to do so. Not to mention the fact that severe anxiety often comes with intense panic attacks, which are something that is horrible to experience in public. Panic attacks suck no matter where you are when you have them, but given the choice I would always choose to be in the comfort of my own home dealing with one rather than out in an unpredictable public environment.

Family Issues and Ex-Pastor’s Wife Resentment

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So I am going through a couple things right now. For one, my already strained relationship with my mother seems to be going farther downhill. To get a bit of the backstory on our relationship, you can check out this post. Anyhow, ever since I confronted my mother about the past, I could feel her slowly backing away. She now lives in another state and at first she would call me once or twice a week and would call back within a day if I called her. Now she doesn’t return my calls for a week at a time and it has been three weeks since she last called me, even though she said she would call me in a few days the last time we talked.

I can’t help but feel a little snubbed and like I am slowly being phased out of her life, which doesn’t surprise me now that she has remarried and doesn’t need me so much anymore. This has always pretty much been the pattern when she gets a man in her life. I stop mattering as much. Honestly, there have been times I’ve considered going “no contact” because the little bit of contact we have now only tends to make me sadder, and the more I feel put aside and ignored, the more I hurt.

I’ve also been dealing with some pent up resentment I didn’t even realize I had about the years I spent as a pastor’s wife. For the first 11 years or so of our 15 year marriage, my husband was a pastor. In the past few years we have kind of drifted from the faith and become agnostic, which is a huge change from what our lives used to be. However, I just realized when having a conversation with my husband the other night, how much being a pastor’s wife for so many years deeply bothered me.

For one thing, I constantly felt judged by the congregation and compared to previous or other pastors’ wives that the congregation knew. I was not old-fashioned. I was not meek and submissive. I did not want to teach, play piano, or lead anything. It just isn’t my personality. My social anxiety makes leading anything a horrifying thought for me, but yet, I found myself almost forced to sometimes be in these roles I hated. I was pretty much forced to teach at times, and while I loved the kids, I felt panic at the responsibility. No one helped or trained me, I was just thrown right in. At one point, I had a panic attack and burst into tears about my fear of teaching in front of the head pastor, his wife, and my husband and yet none of them seemed to take it seriously and pretty much just patted me on the shoulder and said I would be all right. But I wasn’t. Even when I found out I had autism and tried to explain to the head pastor why that made social things so hard for me, his response was that everyone has those problems. But no – everyone does not!!!

My husband now realizes how many mistakes he made by pushing me. He is sorry and has genuinely apologized for putting pressure on me and making me feel like I had to do things that made me anxious to the point of sickness. He realizes now that he learned that behavior from his own parents who pressured him constantly about being involved in church and often tended to ignore his feelings if he didn’t want to do something. Like most people, he was acting out the unhealthy patterns of his family as an adult and unfortunately, I got the brunt of it.

Anger, Mania, and Standing Up for Myself

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Last night I had a definite episode of mania. Wanting to stay up all night again, feeling like doing a million things at once, wanting to jump out of my skin, tempted to spend way more money than I should, barely able to sleep. If you read my rant yesterday, then you know that I was already dealing with a lot of anger, so I can’t help but wonder if anger can bring on a manic episode? I honestly don’t know whether that is possible or not, I should probably ask my psychiatrist, but it does seem interesting that after being upset and angry I became so manic.

Something else happened last night that made me even angrier than I had been when I wrote the rant post yesterday. Someone else in that Facebook group commented on the post I had written that only 1 or 2 of my mental or physical conditions could be disabling. They said that the Asperger’s and Bipolar might be disabling, but the PTSD, Social Anxiety Disorder, Fibromyalgia, CFS, Plantar Fasciitis, IBS, chronic infections, Degenerative Disc Disease, and bulging discs are NOT disabling. That really set me off.

At first I just told the girl that she should research the conditions and learn more about them if she thought that. However, she went on to say that I was the one who was ignorant and that I would probably “argue with a brick wall”. That really made me mad. I even asked her why she was being such a bitch because I hadn’t done anything to her. For me, saying something like that is EXTREMELY CONFRONTATIVE, but I also felt so proud of myself for standing up for myself for once in my life. Standing up for myself has always been a real challenge for me, so much so, that many people have told me over the course of my life that I needed to stop being a doormat and quit letting people walk all over me.

In person, I would still likely have a really hard time standing up for myself, mostly because when things become confrontative or stressful, I tend to struggle with selective mutism, which is a common thing for people with autism to deal with. Throughout my life, whenever I was bullied or abused, I almost always found myself temporarily struck dumb, unable to formulate a response or rebuttal. It generally only happens when I feel threatened in some way, but it is very frustrating. I figure standing up for myself online is at least a start though!

Social Security Disability Rant

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Ok, so I had another subject planned for today’s post, but I need to rant a bit, so I’ll save that topic for later. I hope you won’t mind listening to my frustration today.

So, I’m part of a group on Facebook for people with certain mental issues, and I have noticed many of the people in the group getting social security disability solely for those mental issues, which I happen to share. I am not upset that they got disability for their problems, but I can’t help but compare it to my own situation and feel angry at how I have been treated by the system.

I’ve been fighting for several years to try and get disability benefits, my worst conditions that affect my ability to work are: Bipolar Depression, Asperger’s, PTSD, social anxiety disorder, fibromyalgia, chronic fatigue syndrome, IBS, degenerative disc disease and bulging discs, chronic bronchitis/ear infections, and severe plantar fasciitis. ALL THAT and yet I am still fighting! It pisses me off because I know people who got it much quicker for SO MUCH LESS or just ONE of my conditions. And none of these conditions are light, even the last rejection letter from social security said the conditions are indeed severe…and yet I got turned down AGAIN? I have a plethora of medical evidence and have tried to follow medical advice to the letter. What more can I do???

I DO have an attorney (my 2nd actually), and I am now waiting for a court date, the 2nd time I will have to go to a hearing for this. The last judge I got had a record for barely approving anyone, which seems unfair in itself. How can it be a fair system when some judges approve a majority of people and other judges approve hardly anyone? Were it not for my husband, I would likely be homeless by now.

To make matters worse, one person in the Facebook group insinuated that plantar fasciitis and chronic ear infections/bronchitis aren’t severe enough to affect your ability to work long term. Well, I’ve had the plantar fasciitis for 15 YEARS. I’ve seen specialists, done meds, physical therapy, long-term steroid therapy, custom orthotics, cortisone shots, nothing helped. Doesn’t seem like it will magically get better at this point. It is so severe I have a noticeable limp and have almost passed out from the pain at times when I was forced to be on my feet for long periods of time.

As for the recurring infections, I’ve had chronic ear infections and bronchitis for many years, often getting up to six within a six month period. I’m now on my 3rd course of antibiotics this year (2018) for the chronic ear infections and bronchitis. Again, I’ve seen specialists, tried a host of medications and other treatments (both medical and alternative) and nothing has worked so far. The amount of antibiotics I have had to take has led to issues with antibiotics not working as well anymore, worsening IBS symptoms, and even episodes of MRSA, C Diff, and colitis which I had to be hospitalized for. These are not minor, fleeting problems.

To make matters worse, I have TRIED to work while fighting for disability. The last job I had (working only two days a week) I was let go from for missing work too much due to medical issues, most of which I was in the hospital or ER for, so they know I wasn’t just “faking”. I also tried being a greeter at Walmart, since it is about one of the only places that actually hires really disabled people and I couldn’t even do that due to my social anxiety, depression, and other health issues. I am not even fighting for welfare here, only the benefits I worked for over the years!

Support Group and Social Exhaustion

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Today hasn’t been the best day mental-health wise. I just woke up around an hour ago and it took me until now to drag myself out of bed because I honestly just didn’t want to move, let alone get up and face the day.

Yesterday wasn’t a good day either. I’m not sure what was going on, but I felt sick and exhausted the whole day. I did make myself go to a group meeting yesterday (a recovery from religion support group). My husband is helping to lead the group and it is fascinating to hear everyone’s personal stories about religion and how specific forms of indoctrination affected each of them differently. Some of those who come truly have experienced abuse at the hands of religious leaders and organizations, much like I have in my past (mostly due to my messed up family).

The meeting lasted almost three hours, which socially exhausted me. Maybe some of you don’t experience social exhaustion, but when you are autistic, being social takes so much focus and attention to do it “right”, that it always leaves me burned out and just wanting to go home and nap. Add to that, the social anxiety I had about going to the group in the first place, and I guess it is no wonder that I felt like crap both physically and mentally most of the day.

I think today I’m just going to try to take it easy and recover from the exhaustion as much as I can. I need to have my precious time alone and indulge in some distractions to take my mind off real life. I definitely welcome hearing from you guys though!

Suicide Isn’t My Biggest Fear

Recently I had kind of a weird realization. If you follow my blog closely, you probably know that I have written posts about how I fear I would be driven to suicide if I lost my husband, mainly because I fear I wouldn’t be able to support myself with all my health problems, and if I lost him I feel like I would lose 90% of my support system.

The other day though I realized something that rather shocked me at first, even though it may not seem such a big thing to others. And that realization was that my real fear isn’t that I WILL commit suicide if I were alone, it is my fear that I WON’T. Maybe that sounds crazy on the surface, but let me explain further. If my husband were to die, that would leave me utterly alone, and I honestly do not believe I could continue to live this life all by myself. If I found myself in that situation, I would have to either A) Give up and commit suicide or B) Find others to trust and rely on.

Option A isn’t my real fear, it is option B. I am terrified of trusting others and letting others in. I don’t trust my ability to choose people who will not take advantage of me or end up abusing me. I feel it is almost a kind of luck that I avoided marrying an abuser in the first place. Most people who grow up like I did, in horrific abuse scenarios (physical, sexual, emotional, or mental) tend to end up surrounding themselves with people who perpetuate the cycle of abuse. I also fear that if any of my past abusers are still around, if I found myself all alone, I would be so weak that I would turn to them. Which horrifies me more than anything. It took me a long time to get free from it all (and I’m still not 100% there), but the thought of returning to hell is far more frightening than the thought of death.

However, deep down I doubt my ability to actually take my own life. I do have a strong survival instinct and an immense amount of anxiety when it comes to any form of danger. Perhaps that is why I always told myself that if I did commit suicide, it would have to be a form that is instant and leaves no chance for reconsideration, because I know if I gave myself time to rethink it I would freak out and seek help.

So, with this odd realization, what is the point of it all? I guess it is some reassurance that maybe I am stronger and more resilient than I always told myself. But more importantly, I need to work on my fear of opening up to and trusting others. It is funny that here on this blog I can be so open and bluntly honest, but in interpersonal relationships I tend to build walls and push people away before they can get too close. Somehow I need to learn to trust myself to be a good enough judge of character to give people a chance. But I don’t know how to do that. I don’t know how to trust myself, let alone others.