Life Update – Health, Exciting News!

It’s been a minute since I just did a life update, so let’s take a minute to do so! I’ll break it up into categories for ease:

Physical health – Thank God, the Topamax increase seems to have helped the migraines quite a bit. They aren’t gone entirely, but have been much better lately. Still having some digestive issues, so I’m seeing the GI doctor soon. We suspect Gastroparesis or some other motility disorder might be at play. I’ve already been following a gastroparesis diet and it has been helping my symptoms, but we won’t know till I get a test obviously. That condition is really common with Ehlers Danlos though.

Mental health – Uh, all over the place. Anxiety like crazy. Kinda hyper. Hard to concentrate and focus…that one has been a real pain lately. Even getting stuff like this done isn’t easy. My brain wants to go in fifty million directions, none of them what they are supposed to be doing. Depression too, but kind of medium level. Like just the blahs. Apathetic. Need constant positive stimuli to not start feeling blah again, but that isn’t reality, is it?

My writing – Finally, some good news!!! First off, I was contacted by a music professor at Central Washington University in Washington state who wants to use one of my poems to set to music for a project she and her colleagues and a few students are working on. They will compose music for the poem (for instrument and voice) and then put together a concert music video for it (because covid and all I assume) and it will be released in April. Of course, I will be credited for my part in the project, and will share the video when I can.

Also, I just got an email today that the educational resources website Twinkl has chosen my blog to be one of their Top Autism Blogs of 2020! They get pretty high traffic on their site, so it is quite an honor and I’m psyched about it!

Neurologist Visit Update

woman-2696386_960_720

Yesterday I saw my new neurologist for the first time to try to figure out why I am suddenly having so many migraines. I must say the visit didn’t start out well. For one thing, they only see new patients first thing in the morning, and I am NOT a morning person. However, I did make it there on time at 9am in the morning, but then I ended up waiting to see the doctor until after 11am!!! Needless to say, I was not a happy camper.

The doctor seemed rather grumpy when he finally came in too. Maybe he was having a bad morning (I would think so with being that behind schedule for a specialist), but after waiting two hours, dealing with a grumpy doctor was not ideal. I will say that even though he was a bit grumpy, he was thorough at least. He asked tons of questions and investigated all the leads I could provide, even bothering to request additional medical records and taking a second look at my imaging tests that have already been done.

By the end of the visit, he had decided to send me for an EEG to check for possible mini strokes or seizures, and another head/neck MRI to see if my cervical issues have worsened in the past two years or if anything else has changed. He also wants me to be tested for Meniere’s disease, an inner ear disorder that may be contributing to my vertigo, ear pain/pressure, and tinnitus.

He noted that my neck was constantly spasming, so he switched me to another muscle relaxer and also put me on Topamax to try to help prevent the migraines (we are hoping it might help my fibro pain some too). I guess we’ll see how it goes from there.