Covid? Update

Well, I did get the test done yesterday at a drive-thru testing center. I was so glad it was drive-thru, because the last thing I wanted to do was be around a bunch of other potentially covid-infected people when I wasn’t sure if I have it yet or not. My doctor decided to go ahead and test my husband too. (By the way, the test wasn’t that bad, I’ve had MUCH worse medical tests!)

We won’t know the results for about a week probably. I’m not sure what to do in the meantime? Do we go ahead and quarantine ourselves in the house since we don’t know? If we do that and we are infected, we will end up being quarantined for about 3 weeks at least.

I don’t know how that will work when someone has to go get milk, prescriptions, and other essentials and it is just the two of us living here. I guess we just minimize going out as much as possible? We definitely won’t be visiting anyone, going out to eat, or shopping for unnecessary items.

Any of you had to self-quarantine at home? Any tips?

Eeyore is My Spirit Animal

Well, things are still a bit rough. My back is still not doing great although it has been a slight bit better. I have been able to cut back a little bit on the pain killers, which I am thankful for. I hate having to take opioids too often. Unfortunately, I did trip over my TENS unit cord and that didn’t do my back or my knees and legs a lot of good:

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I was thankful the fall didn’t make my back way worse though as that easily could have happened.

Yesterday I even felt up to going down to a nearby thrift store and just walking around a little bit to see if I could loosen my back up any. I even found a new Eeyore to add to my collection while there (the pink and light blue one on the far right):

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Eeyore is my spirit animal….unfortunately.

Gastroscopy Update

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Hey everyone! The upper GI endoscopy is officially done! Luckily, the anesthesia worked great and I didn’t feel a thing until afterwards. They were running behind schedule so I had to wait a while to get into the procedure room, but once I got in there, the rest was easy. I woke up with a bad case of the hiccups, but that didn’t last too long.

The doctor said that the results looked pretty good. She did fix some scar tissue in there (I’m assuming from the acid reflux) and took a biopsy (mostly to check for celiac). The worst after-effect has been that when I ate lunch it hurt quite a bit to swallow food. Drinking hasn’t been too bad though. I grabbed a smoothie and some fruit and veggie juice on the way home, so I’m set for the rest of the night, even if it is hard to eat solid food.

I want to thank all of you for your kind thoughts and prayers for this appointment. I tend to get super anxious about anything I haven’t been through before and hearing your encouraging words and personal stories helps. I’m planning to take the rest of the day easy and just relax or maybe nap.

Donations, SSDI Backpay & More

First off, I wanted to share that I got another monetary donation to my blog! Thank you so much! It looks like the donation came from China, which is really cool, I didn’t even know I had regular readers in China!

Also, I finally got my SSDI payment for last month…and even more exciting, I got all my backpay!!! We plan to use the backpay to do some repairs around the house and on the car, replace some electronics and appliances that are breaking down, and hopefully build a porch onto our house! I love spending time outside, but being directly in the sun for very long makes me physically ill (vampire genes?), so having a porch with a roof will really help.

I also got a new phone with a much better camera, so I am hoping to be able to make more YouTube videos and maybe do some YouTube livestreaming. We’ll see though. I already have a lot on my plate, but I do have over 3,000 followers on YouTube and would like to communicate with them more. Here’s a cute pic from when I was playing around with the new phone last night:

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SSDI Hearing Update

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Sorry I didn’t update you all yesterday after the hearing, but I was just too exhausted mentally, emotionally, and physically after the stress of the day. Overall, I think the hearing went ok. It didn’t start out very well since my husband and I had trouble locating the right building and ended up walking through the thick, slushy snow so far that I had an asthma attack, started crying, and was totally soaked from the knees down by the time we actually found the right building. The roads were bad too from the snowstorm and parking was almost impossible since none of the parking lots had been cleared yet.

Once we got into the building, I had a few minutes to recover from the asthma attack and calm down at least. I also had about 15 minutes to meet with my lawyer before the hearing to go over everything again. During the hearing itself, I was quite nervous. I was doing a lot of rocking back and forth (“stimming” in autistic terms).

I think I only had the nerve to look at the judge two or three times the entire hour I was in there. I mostly stared at the microphone and tried to block out everyone else there while answering questions. That seemed to help my social anxiety. I think I did a decent job answering the judges questions…and she asked a lot. I never lost control of myself, although in my closing remarks I did tear up a bit and got a little emotional talking about how hard it had become for me to keep a job due to my physical and mental disabilities.

Unfortunately, the judge did not tell me her decision yesterday. I will have to wait to receive the official verdict letter. On the positive side, my attorney did say afterwards that he thought it went great and even on the off chance that the judge gave a negative verdict, he thought I had a strong enough case that he would appeal that. I hope it doesn’t come to that though, God only knows how much longer that would make the whole thing drag out…and quite honestly, we need the money as soon as possible, especially since I just got a $1,500 ER bill (our deductible sucks).

Water is Back! 800+ Blog Followers! Awesome Book Series!

Hey everyone! There were a few random things I wanted to share today. First, an update about my water heater situation….we now have hot water again! I can shower, I can brush my teeth, and I can flush the toilet again! Woo-wee!!! We are out almost $2,000 though, so that part really sucks.

Secondly, I want to thank you all so much for getting my blog to over 800 followers!!! That is awesome. I set a personal goal a while back to hopefully reach 1,000 followers by the end of the year and I might not exactly reach that, but I’m getting close and I appreciate all the support! You guys are awesome! You have no idea how much having communication with you all helps my mood and my attitude in general. You make me feel less alone and like I do have people in this world that care about me other than my immediate family.

Lastly, I want to share this awesome series of books with you all. If you are like me and you enjoy the children’s picture book format, but also have a sarcastic, wacky sense of humor, and a love for philosophy, I’m sure you will love this series just as much as I did!

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The series is called the Animalosophy series (written by Eric Kesselman and illustrated by Erica Missey) and includes the following books:

#1 The Existential Giraffe
#2 The Moribund Mouse
#3 The Perspicacious Penguin
#4 The Nihilistic Sea Otter

Water Heater Update

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Ugh. Turns out we have to replace the entire water heater. Over $1,800 (which we can’t afford)! This seriously sucks. To make matters worse, the guy couldn’t put the new one in until today, so we had to go all day and night without any water at all (they had to shut it off entirely due to the enormous leak). The guy said he would be here around 11am to put in the new water heater and it is now 12:30 and no sign of him yet, although he says he’ll be here soon.

Due to all this I am grumpy and feeling yucky and just want to whine lol. I can’t even flush the toilet!!! I know this may seem crazy to non-autistic people, but the huge change in my daily routine has driven me freaking crazy and brought on a nasty IBS flare. God, I hope this is over soon.

This seems like a good time to remind everyone that I do have a PayPal donation button set up on my blog if anyone ever wants to send a few bucks to help out or support my blog. You can donate any amount and don’t even have to have a PayPal account of your own. You can find the button on the right side panel of my blog home page, or access it through the Support My Blog page. If you are able to help out, that is great, but if you aren’t, your kind thoughts and well wishes mean the world to me.

Another Fun Visit to the ER

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I spent yesterday in the ER. Always lots of fun. I was rather freaked out because I literally couldn’t swallow at times and felt like I was going to choke to death or something. I also was having chest pains, trouble breathing, and feeling like I was going to pass out. Now I get to go back to the GI doctor because they think there are probably issues with damage to my esophagus.

Still not feeling much better today. They put me on some meds that are supposed to protect and hopefully help repair damage done to the esophagus, but no relief yet. I still struggle to swallow, keep coughing, and feel like there is something permanently stuck in my throat. Eating and drinking is no fun, even the smoothie I tried to drink earlier struggled to go down. My chest, especially around my breastbone feels like there is an elephant sitting on it. Man, this sucks.

New Blog Theme, TMJ, and Being Silly for Halloween!

Hi everyone! First off, I want to say that I changed the theme (appearance) of my blog slightly. I don’t know if you all will notice or not, especially if you read most of my posts on WordPress’s reader function, but for those who actually visit my blog address, I hope you like the changes. I thought it was a bit more visually appealing, especially for sharing art and poetry, which I like to do.

Yesterday was the first day since my wisdom tooth surgery I was able to get out and have some fun. We didn’t do anything major, just went out to eat (still having to eat soft foods, so we opted for pasta), and did some Halloween shopping at Goodwill, where I decided to try on a couple “spooky” accessories:

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It was fun just playing around and being goofy after being sick at home for so long. The surgery pain is much better, although I’m pretty sure that this whole ordeal has brought on a flare-up of TMJ (a jaw joint disorder), which I have had issues with in the past. It still hurts to open my mouth very wide, talk much, chew anything, or smile big.