I went to the doctor today because my ear is still killing me and I’ve been running a fever for several days. Turns out I have another middle ear infection…this has to be about the sixth one in six months. Boy, am I getting tired of this. Not much I can do either, since I have tried many “alternative medicine” cures for ear and sinus infections and have went the whole ENT and allergy specialist route, only to find that nothing really works. In the end, I feel like it is just my own immune system working against me.
The doctor also said that she suspects the mouth sores I was dealing with might have been related to Coxsackie Virus (or Hand, Foot, and Mouth Disease). Adults don’t catch that illness nearly as often as kids do, but it can happen, and with my autoimmune issues, I guess it wouldn’t surprise me to find out I did get it.
So, I am on ANOTHER course of antibiotics. Something that depresses me to no end because I fear with all the antibiotics I have had to take lately that I may end up developing C Diff again, which caused me to be hospitalized for almost a week a few years ago. Needless to say, I am not in a good place physically or mentally and am just tired of it all. This chronic illness shit sucks.
The last week has been rather rough. Healthwise, I seem to be having some immune system issues. For some reason, I have gotten sores all over my gums and strangely, under my tongue. They aren’t like regular canker sores, they are more like little painful little red balls and swollen, ulcerated patches. I’m not sure exactly what they are, although while looking around online, I did find forums full of people with CFS and fibromyalgia who have experienced similar outbreaks, so I am guessing maybe it is related to that.
Unfortunately, the sores that are near the back of my jaw are causing an immense amount of ear pain, to the point that it feels like an ear infection. I was also running a low grade fever last night, which makes me think it is some kind of virus or infection causing the sores. I am taking some antivirals suggested by the doctor, but they don’t seem to be helping at all and are only serving to make me nauseated on top of everything else.
Today I was supposed to go to a birthday picnic for one of my husband’s coworkers, but I simply didn’t feel up to it. I feel bad for letting him down because I know he really wanted me to go so that I could get to know his friends better, but socializing is the absolute last thing I feel like doing right now.
All of this has me rather depressed and feeling lethargic. It feels like ever since I overdid it on our mini vacation to Kentucky, my health has taken a nosedive and is struggling to recover. That is what many people don’t understand about CFS, that once you trigger a relapse, it can take weeks to get back to “normal”…and our “normal” is far below average to start with! Chronic pain and chronic illness are no joke and make for a rough life sometimes.
Today I’m feeling about as old as Bugs and Daffy look in this picture I colored a while ago. I’m only 35 years old, but it often feels like I am much older physically, thanks to the chronic fatigue syndrome and fibromyalgia. My husband currently has the flu and when he was telling me how bad his body aches and fatigue were, I couldn’t help but think that I’d never be able to tell the difference from my everyday body aches and fatigue. In fact, with my chronic ear and sinus infections, the only way I ever know for sure if I actually get a virus is if I am running a high fever. Otherwise, I figure it is just my normal daily crud I have to deal with.
Sometimes it is easy to forget what it was like to NOT feel sick all the time or hurt constantly. I can’t even imagine living without it all now. I’ve become so used to the routine that I’ve accepted it in a sense and admitted defeat in my own mind. That is likely not a good thing, considering that I feel I’ve lost all hope to ever feel healthy again. I’m not writing this today to try to illicit sympathy or just to whine, but it is what I’m thinking about and dealing with, so I felt it only honest to share. If you are a fellow sufferer, let me tell you that I am truly sorry you have to go through all this as well.