So today I’ve mostly spent my time watching YouTube videos about Seroquel, especially videos about the side effects of taking it and the experiences of people who decided to get off of it. I’m not making any rash decisions about the medicine myself (which I do currently take). The medicine is a wonder drug when it comes to helping me get to sleep, which is the main reason why I am taking 50mg of it a day (which isn’t even a high dosage). I do like the warm, fuzzy feeling I get after taking the meds and the way it knocks me out within an hour of taking it. I’ve tried other sleeping pills and none of them worked nearly that well or dependably.
However, I am having some side effects that I assume may be from the Seroquel. I am sleeping at least 11 or 12 hours a night and still waking up groggy and just wanting to sleep all day. I normally get up, have breakfast, then lay back down on the couch and try not to fall back to sleep. I am exhausted constantly (even more so than just from my normal CFS symptoms). I am starting to feel a bit “zombiefied” as well. As I’m typing, I kind of feel disconnected from my fingers and feel like they are somewhat trying to do their own thing rather than what I want them to do. I wake up each day with a hangover feeling and often with a nasty headache that sometimes lasts all day. I am also HUNGRY all the time it seems, especially for sweets. I really fear gaining weight. I’ve been on the med about 3 months now and have gained a few pounds, but I fear I would gain much more if I lost my self control and ate as much as I wanted.
I guess the reason I am sharing all this is just to see if others who have taken it have experienced similar things? If so, did you keep taking it? I really debate whether sleeping regularly is worth all the side effects or not.
*Art by Maranda Russell
I’ve been really struggling with depression lately. And I mean really struggling. Like, can’t get out of bed struggling. Like sleeping more than half the day struggling. Even when I do finally get out of bed, I often find myself back in bed soon after, lying there staring at the wall and the ceiling for unlimited amounts of time. I do still have an appetite at least, but I think a lot of that is the meds, which make me hungry almost all the time. Of course, sometimes with depression I do tend to comfort eat as well. So along with the desire to do absolutely nothing, I am also plagued with anxiety about gaining weight from being hungry all the time. I don’t see the doctor again until the day after Christmas, so I am just having to muddle through the best I can, but it is really hard. I feel like I am constantly fighting just to function at all. Even washing my hair or brushing my teeth seems too much for me most of the time and I have to force myself to do it. This level of lethargy is ridiculous, and sometimes I wonder how I’m alive at all.
Here are two new, mixed media collage art trading cards. Both are for sale on my Ebay store page if anyone is interested 🙂 The first card was inspired by love, romance, and sensuality, and the second card was created partly just because I love wolves and partly because the new meds I’m on have been making me hungry ALL the time!
It seems that there is this stereotype about Bipolar patients not wanting to take their medicine or stopping medicine without consulting a doctor. However, like most stereotypes, perhaps there is some truth to it. I personally have Bipolar type 2 and often find myself wondering, “Do I really need these medications?” or “Are these medications actually helping or hurting me?”. Why do I wonder this? Mostly due to negative side effects. I can’t help but wonder sometimes if the cure isn’t worse than the disease at times. Weight gain, acne, digestive problems, being pushed further into depression or hypomania, anxiety, jitters, uncontrollable muscle spasms, irritability, crying spells, etc. Sometimes I really do wonder if I wasn’t better off before.
And about consulting a doctor before stopping meds, in my case at least, my psychiatrist is only able to see patients once every few months due to the shortage of psychiatrists in the area. He is EXTREMELY busy. It is unlikely I will hear from him in the interim, even if I have a question. Of course I can speak to his office staff, but that isn’t the same as actually speaking to a doctor. And even if I were to call and tell the office staff I wanted to stop taking the medicine, likely they would just request I wait until my next appointment, which may be months away. If the medicine is truly causing side effects I can’t stand or making me feel worse, why would I want to endure that for months before making a change?
I am not writing this post to encourage anyone to go off their meds or anything like that. I believe strongly in listening to medical advice, but I wanted to explain to those who are outside of the Bipolar loop why this can often become a legitimate issue. And no, right now I am not stopping my own meds, but I have been tempted many times, which makes me sympathetic to those who have.
I wrote the following while I was pretty hypomanic. Thought I would share more as a glimpse into my life and hopefully educational about bipolar 2:
I AM bipolar, I’m officially crazy. I can’t seem to control myself, but on the medicine I feel SO much better, who cares if I’m hypomanic? Not sure I wanna tell the doctor the truth. Thank God I have my husband to keep me in check. I AM perpetuating the cycle. Thank God I never had kids. My muscles twitch and I can’t control them. I feel like I have Parkinson’s, but I’m good with that. I am stressed the fuck out, but I don’t care. I don’t want to sleep, but I have a magic bullet called Seroquel. I just worry I’ll get fat, but how fat can I get when I can’t sit still? Every dance in creation I think I’ve done today, even if it was spazzy. Some might look at me and say I’m a danger. I look at me and say I’m alive.