Why Doctors Frustrate Me – Trying to Get Testing Done

upset-534103_960_720

I want to begin this post by sharing a horrible dream I had last night. I was sitting in row G of a live outdoor show (my dreams are pretty specific sometimes), when someone behind me threw up all over my head. It was disgusting! I still remember the smell and feel of the vomit as it trickled down my face and hair. Ick! By the way, how do you “smell” things in a dream? I don’t know, but I sure did!

Ok, now that I got that off my chest, on to the main topic of this post. I am frustrated with doctors. Why? Because time and time again, I have had to fight to get testing that I feel is important, because many doctors tend to think I am just being a hypochondriac or overly anxious when I tell them I suspect a particular diagnosis.

However, time and time again, I have been proven RIGHT when I finally got the testing. C Diff, MRSA, medication allergies, asthma, CFS, fibromyalgia, costochondritis, pancreatitis, Aspergers, bipolar…all of these are conditions I highly suspected long before I actually got diagnosed, and yet, I had to fight to even get them checked out because doctors thought I was just being paranoid.

The most recent testing I am fighting for is Ehlers Danlos (EDS). I meet the major and most of the minor criteria for the condition, but have been fighting to even get a referral for testing. EDS is often comorbid with high-functioning autism, so that is what first made me interested in the condition. I am positive I score at least 6 or 7 out of 9 on the Beighton Score (higher on the Brighton Score).

I guess I can sum up this post in one sentence: Why is it so damn hard to get a simple test done???

Advertisements

Feeling Old and Sick

DSC08142

Today I’m feeling about as old as Bugs and Daffy look in this picture I colored a while ago. I’m only 35 years old, but it often feels like I am much older physically, thanks to the chronic fatigue syndrome and fibromyalgia. My husband currently has the flu and when he was telling me how bad his body aches and fatigue were, I couldn’t help but think that I’d never be able to tell the difference from my everyday body aches and fatigue. In fact, with my chronic ear and sinus infections, the only way I ever know for sure if I actually get a virus is if I am running a high fever. Otherwise, I figure it is just my normal daily crud I have to deal with.

Sometimes it is easy to forget what it was like to NOT feel sick all the time or hurt constantly. I can’t even imagine living without it all now. I’ve become so used to the routine that I’ve accepted it in a sense and admitted defeat in my own mind. That is likely not a good thing, considering that I feel I’ve lost all hope to ever feel healthy again. I’m not writing this today to try to illicit sympathy or just to whine, but it is what I’m thinking about and dealing with, so I felt it only honest to share. If you are a fellow sufferer, let me tell you that I am truly sorry you have to go through all this as well.