Vacations: A Harsh Reality of Chronic Illness

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Over the weekend my husband and I took a short vacation to Louisville, KY to celebrate our 15th anniversary and spend some quality time together. I did have a good time, but I must admit that I dread and sometimes even regret vacations just as much as I look forward to them.

Why? Simple. Chronic Fatigue Syndrome. Vacationing when you have CFS sucks. Big time. Planning the vacation wears you out. Packing wears you out. The travel wears you out. Even though I don’t do the driving, I am still exhausted by the time we even get to our destination. Often, as soon as we get to our hotel I immediately have to lay down for at least a couple hours to recuperate, even if it is only a 2 or 3 hour drive as this one was.

The main excursion we planned was to the Louisville zoo. We had never been there before and both my husband and I love animals. Luckily, it wasn’t a huge zoo, but by the time we had toured about half of it, I was in really poor shape. I had to sit on each bench we came by and rest. I even had to make do with the floor a few times and just collapsed. I was nauseated, felt like passing out, developed a migraine-like headache, and felt extremely overheated, even though it wasn’t that hot out and I stayed hydrated. Heck, most of the buildings were even air conditioned. THIS is what living with CFS is like.

I didn’t get to see much of the rest of the zoo. I was too busy looking for places to rest and recuperate for the trek back to the car. My legs ached so badly and felt so weak that I feared they would give out on me multiple times. My entire body felt like I had been run over or slammed into by something big and heavy. Somehow I did make it back to the car (after resting many, many times on the way there), and then we went directly to our hotel so I could recuperate for the rest of the day. I didn’t even have the stamina to go out for dinner a few hours later, so we ate at the hotel.

I went to bed early, hoping I would feel better in the morning, which didn’t really happen. The next day we visited a cool indie bookstore I had wanted to go to, but I was almost too tired to even enjoy that. We went and found a place by the Ohio River to sit and watch barges pass by, which was peaceful and relaxing. During the drive times to our locations, I curled up with a pillow and laid my seat back to doze.

By the time we headed back for home, I was too exhausted to care about much of anything. When we arrived home, I went almost straight to bed, even though it was only 5pm. The next day (Labor Day), my hip and back were so sore (with a pinched nerve thrown in), that I spent most of the day laying in bed watching a Lake Placid marathon on the Syfy Channel. Any form of movement was excruciating.

All of this makes me wonder if vacations are really worth the trouble. It also makes me wonder if maybe sometime soon I will need to get a motorized chair to even survive simple outings like this. I hate to give in and do that, but my worsening symptoms make it an almost certain possibility eventually.

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Life Update: MRSA, Cleveland Vacation, Freelance Writing, and Book Awards!

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Me at the USS Cod Museum in Cleveland, Ohio

As June 2016 draws to a close, I thought I would do a quick life update. Things have been kind of crazy lately between health problems, summer vacations, book releases, editing and freelance writing, vlogging, etc. So here are a few highlights (or low points) of my recent days:

*We went on an actual vacation for the first time in a few years! We went up to Cleveland, Ohio and went to the Rock & Roll Hall of Fame, the USS Cod Submarine Museum, the Cleveland Zoo, Cleveland Botanical Gardens, and Lake Erie. I found some awesome driftwood while walking along the beach, drooled over the Michael Jackson and Nirvana memorabilia at the Hall of Fame, rode a camel, and ate way too much junk food!

*My hubby is fighting off another MRSA infection, which makes me afraid we are both going to be passing it back and forth again. Even with all the bleaching and cleaning we do, that stuff is hard to keep from spreading!

*I am proud of the fact that my career in freelance writing and editing continues to expand, with many repeat customers and brand new clients! My favorite projects are those that align well with my natural interests (specifically children’s writing and poetry), but even some of the more technical jobs have been more fun than I expected! These jobs allow me to continue to do what I love to do and work at home!

*My YouTube vlog, Maranda’s Toys & Books, continues to grow! I have been pleasantly surprised to find out I’m not the only nerdy adult who still loves collecting dolls, ponies, action figures, and other things from her childhood! I am even getting some free toys and books to review on my channel which is pretty darn awesome!

*My new middle grade children’s book, “Creepy, Funny & Just Plain Weird: Stories and poems for kids“, has already been nominated for a children’s book award! Fingers crossed that I win! If you haven’t read it yet, please give it a try!

Lions and Tigers and Bears – Oh My!

Ok, so I didn’t see an African lion today, but I did see a mountain lion, a couple different kinds of bears and some Bengal tigers.  Where did all this take place?  At Heaven’s Corner, a little animal rescue sanctuary not far from where we live.  This isn’t our first time visiting, in fact, we have been somewhat regulars there.

We have listened to the workers there explain how most of their wild animals are pets that people obtain illegally, and then when the wild animal gets too big or tries to kill their owner, the animals get dumped.  We have also talked to the guy who feeds the mountain lions and saw his half-eaten Nike sneaker.  Apparently he went into the lions den one night dressed differently and wearing cologne, so that the lion didn’t recognize him and almost mauled the guy to death.  The people who work there are brave and caring, but most importantly, they are doing what they love – rescuing animals that otherwise might be put down for good.

So here is my plea…I know illegal pets can be tempting.  Perhaps like me, you have always dreamed of owning a leopard, wolf, penguin or baby bear for a pet…but if you really care about the animals, think it through.  Are you really qualified and able to care for a truly wild animal?  Wouldn’t these animals be better off and happier left in the wild, rather than caught and sold as novelties?  It’s sad to see animals caged up that might have been free.  While you watch the bears or the tigers pace in their small jail cells, think about what that life must really be like.  Although I am thankful to animal sanctuaries for taking in these animals, I wish that it wasn’t necessary to do so.

By the way, while I’m thinking about it, make sure you support any local wildlife sanctuaries or conservation efforts near you.  Whether you donate money, time or your natural talents, the earth and all of its creatures will be better off for your efforts.